It was three weeks yesterday that I started lymphedema therapy at the Virginia G. Piper Center in an attempt to decrease the swelling in my leg before being fitted for new flat-knit stockings.
Archives for March 2014
“Suffering in silence results in only one thing—society’s collective yawn. Let others decide the pecking order of what is most important. Change comes when we demand it. Change comes when people don’t take “No” for an answer. Change comes when groups coalesce around a compelling cause and systematically advance their agenda in every forum imaginable.” William Repicci, LE&RN Executive Director, from his recent article Shedding Light on Lymphedemic, National Lymphedema Awareness Day, March 6, 2014.
This is an exciting time to be a part of lymphedema advocacy. We have the opportunity like never before with the reintroduction of the Lymphedema Care Act to Congress to make the world take notice of lymphedema and make our voices heard. [Read more…]
As many of you know from my Facebook post the night before the race, I was pretty anxious about running the half marathon. It seemed the more that people asked about it the worse my anxiety became and I couldn’t shake the fear that I felt – fear of exhaustion, fear of the unknown, fear of failure, and fear of weakness. I was worried about everyone who would be watching me. I wanted to live up to others’ expectations that I perceived they had of me. I wanted to prove that I was capable of great things, but I couldn’t help but feel that I was going to let people down.
Jordan and I went to dinner the night before the race and I explained to him why I was feeling so overwhelmed and scared. After I finished talking, he asked me, “Why do you feel like you have to live up to other people’s expectations of you, perceived or not? This experience is for you.” He asked me to think about the last year I’ve spent learning to run and training for my races. I began to think about how far I had come, and truly I felt emotional remembering how my life had changed, not just a year ago when I started running, but also 13 years ago when I was diagnosed, ten years ago when I lost my mother, six years ago when I decided to take control of my own life, four years ago when I married Jordan, and two years ago when I had Chloe. Jordan made me think about all the hard work I had put into running which extended to me remembering how much pain and heartache I had put into coming back into life after my diagnosis and losing my mother. I decided to focus on that good feeling and just get myself ready for the race the next morning. Little did I know that there was more refining of the soul that I would have to do the next day.